Trisomy X Information
I found that when I looked for scientifically valid information on Trisomy X, it was really hard to find. There was a lot of information, but most of it was based on invalid or incomplete studies. For example, there is a study often referred to as the "Denver Study". This was based on a small sample selected from girls that had already shown issues. Below you will find links to the studies and other information I found to be most helpful.
Unique Trisomy X Syndrome Brochure and Data
Great information pamphlet with data about girls with Trisomy X at different ages:
Dr. Tartaglia's Overview of Trisomy X
Medical Review of Trisomy X by one of the few experts on this syndrome.
AXYS Trisomy X Information Brochure
Parent's brochure for newly diagnosed families
Great Article for Explaining Trisomy X
AXYS Trisomy X Panel Info
Dutch Contract Group Brochure
An excellent resource with easy to read information and pictures for parents and caregivers of girls with Trisomy X.
Elizabeth and her Extra X
A great book to help tell your daughter about Trisomy X
Trisomy X Summary and Description from the Mayo Clinic
Genetics Home Reference: Triple X Syndrome
Excellent reference given out by genetics department
Special Needs Parenting
Story from a mom and daughter's perspective about Trisomy X. January / February: Pages 13-17