Trisomy X Information

I found that when I looked for scientifically valid information on Trisomy X, it was really hard to find.  There was a lot of information, but most of it was based on invalid or incomplete studies.  For example, there is a study often referred to as the "Denver Study".  This was based on a small sample selected from girls that had already shown issues.  Below you will find links to the studies and other information I found to be most helpful.


Unique Trisomy X Syndrome Brochure and Data

Great information pamphlet with data about girls with Trisomy X at different ages:


Dr. Tartaglia's Overview of Trisomy X

Medical Review of Trisomy X by one of the few experts on this syndrome.



AXYS Trisomy X Information Brochure
Parent's brochure for newly diagnosed families

Great Article for Explaining Trisomy X

AXYS Trisomy X Panel Info
Dutch Contract Group Brochure
An excellent resource with easy to read information and pictures for parents and caregivers of girls with Trisomy X.

Elizabeth and her Extra X 
A great book to help tell your daughter about Trisomy X

Mayo Clinic

Trisomy X Summary and Description from the Mayo Clinic

Genetics Home Reference: Triple X Syndrome

Excellent reference given out by genetics department

Special Needs Parenting

Story from a mom and daughter's perspective about Trisomy X.  January / February: Pages 13-17